We need corporate sponsors(holes), donations for raffles , silent auctions, food, etc. Taylor Lance Taylor Lance, a 14 year old 8th grader from Manchester, ...

Valerie Is a young girl living with Cystinosis. Cystinosis is a genetic metabolic disease that causes an amino acid, cystine, to accumulate in various organs of ...

The Orphan Pharmaceutical Company : Orphan Europe is a pharmaceutical company developing and distributing orphan drugs for the treatment of rare diseases. ...

Raptor Pharmaceuticals is a publicly-traded biotechnology company dedicated to expanding the reach and benefit of established therapeutics, including DR ...

Raptor Pharmaceuticals focuses on improving drug targeting to expand the reach and benefit of existing therapeutics into underserved patient populations, ...

The Hide & Seek Foundation for Lysosomal Disease Research. Hide & Seek is a community of people dedicated to finding treatments and cures for a devastating ...

The British Kidney Patient Association was founded in 1975 by Elizabeth Ward, whose son Timbo was diagnosed with kidney failure at the age of 13 years. At that ...

Cystinosis Foundation was founded in 1983 and is an all volunteer, non-profit organization dedicated to providing services for those suffering from cystinosis

The Cystinosis Foundation UK is a charity concerned with promoting awareness of Cystinosis and supporting both families and medical research within the United ...